Wednesday, February 11, 2009

helping adults to live with fetal alcohol syndrome

Fetal alcohol syndrome (FAS) is a lifelong condition, and there is no cure. There are, however, protective factors that have been found to help individuals with the condition. For example, a child who is diagnosed early in life can be placed in appropriate educational classes and given access to social services that can help the child and his or her family. Children with fetal alcohol syndrome who receive special education are more likely to achieve their developmental and educational potential. In addition, these children need a loving, nurturing, and stable home life to avoid disruptions, transient lifestyles, or harmful relationships. Children with fetal alcohol spectrum disorders (FASDs) who live in abusive or unstable homes, or who become involved in youth violence, are much more likely than those who do not have such negative experiences to develop secondary conditions associated with the condition.

For people living with fetal alcohol syndrome, daily activities, such as working, managing money, and maintaining a home, present huge challenges. In a 1996 study of adults with fetal alcohol syndrome conducted by the University of Washington, 50 percent had trouble finding a job, and 60 percent had trouble keeping a job. Eighteen percent achieved independent living, but fewer than 10 percent were able to do so without employment problems. Approximately 80 percent of people with fetal alcohol syndrome have trouble managing money and making decisions. Furthermore, certain percentages of people living with fetal alcohol syndrome needed help with other daily tasks, including:
Getting social services (70 percent)
Getting medical care (66 percent)
Having relationships (56 percent)
Shopping (52 percent)
Cooking meals (49 percent)
Staying out of trouble (47 percent)
Structuring leisure time (47 percent)
Keeping clean (36 percent)
Using public transportation (24 percent).

fetal alcohol syndrome canada education

Care for children with fetal alcohol syndrome in Canada costs millions of dollars per year, and researchers call for more resources for fighting the disease. "The cost ... is staggering, but it really does not tell the true story of misery, poor quality of life and life-long suffering for the children and their families who are not in dollars," said Dr. Gideon Koren, the supervision of a recent study on fetal alcohol syndrome.
The study, from Toronto's Hospital for Sick Children and St. Michael's Hospital, estimates the disease costs Canada more than $ 344 million per year. Nineteen per cent comes directly from the family of pocket.
"It is hoped that these fundamental paper will lead to much-needed funds," said Dr. Brenda Stade, the study lead author and program director of the Fetal Alcohol Spectrum Disorder Clinic of St. Michael's Hospital.
Fetal alcohol syndrome is caused when women drink during pregnancy. It is the most common cause of life-long development and cognitive disabilities among Canadian children, up to one in 100 births, Stade said.
The study found, families pay an average of about $ 14,000 per year to meet the needs of a child with fetal alcohol syndrome. Special education and medical costs accounted for approximately one third of out-of-pocket costs for each family.
The greatest stress occurs when children six o'clock-15 o'clock, as the cost increase for specialized training and the deployment of psychologists, psychiatrists and occupational therapists.
Fetal alcohol syndrome leads to a series of physical and mental health problems, from learning to behavioral problems. Affected children may also include a wide range of socially inappropriate behavior, including lie, theft, and the inability to be distinguished from wrong.
There are an estimated 400,000 Canadians with fetal alcohol syndrome.
The study appears in this week's edition of the Journal of FAS International.

the truth about fetal alcohol syndrome

Most baby bottles with milk or formula. Since babies a little older, maybe some prefer juice. But how many mothers would fill their Infant's bottle with beer or wine?
That is indeed what happens when pregnant women drink alcohol, and it is the leading preventable cause of mental retardation and birth defects in the United States. Researchers estimate that one in every 100 children may be through some type of fetal alcohol spectrum disorder, the condition is more common than autism.
"If the mother drinks, the baby drinks," said Paula Lockhart, director of the Fetal Alcohol Research Center in Baltimore Kennedy Krieger Institute.
The effects last a lifetime. Alcohol exposure in the womb can lead to facial deformities, mental retardation, poor coordination and motor skills, and attention problems, which led to difficulties, a job or live independently as adults.
At the first birth as a defect in 1973, fetal alcohol syndrome was thought that only children born to alcoholic mothers. Other research has shown that milder effects, also known as Fetal Alcohol Spectrum Disorders may by a prenatal exposure to alcohol.
Just last month, researchers at the National Institute of Environmental Health Sciences, that women who binge drink during pregnancy can double or triple their chances for a baby born with a lip or cleft palate.
Severity of FAS is easily recognizable by its physical effects: a small head, small eyes, a flat mid-face and short nose, a flattened philitrum (the distance between mouth and nose) and thin upper lip.
Many children with mild, mainly neurological symptoms are incorrectly diagnosed with attention deficit hyperactivity disorder or Asperger's syndrome, Lockhart said, and others are simply labeled difficult or stubborn. These children may have average IQS and verbal skills, disqualify them for special education or other services, as there is no definitive test for FAS and related disorders, she said.
There is no way to tell how alcohol will affect a particular fetus, said Lockhart. When two mothers drink during pregnancy can be a healthy child, while the other has serious problems.
"You're playing Russian roulette, if you drink during pregnancy," she said. "Some are lucky. We do not know who is who and who not."
FAS is an expensive problem, too. According to the National Organization for Fetal Alcohol Syndrome, lifetime care of a person born with FAS range from $ 860,000 to $ 4.2 million. Care of people with the condition, cost $ 5.4 billion in 2003, not even with milder spectrum disorders, so that prevention can save money and improve quality of life, said Lockhart.
Karla Robeson, senior support coordinator at the ARC of Frederick County, works with families, the FAS, and said she was stunned when they discovered the best drink during pregnancy. Robeson guess was the first young, unmarried women with low incomes.
But the latest survey by the Maryland Pregnancy Risk Assessment Monitoring System shows that drinking during pregnancy is the furthest among married, non-Hispanic mothers older than 35 with college degrees and incomes of $ 20000 or more.
Robeson can be said, because doctors assume older, educated women who already know that they do not drink during pregnancy and need not be warned.
About one third of mothers in Maryland Kinderwagen poll said the health care professionals do not talk to them about alcohol will affect their children, and about 20 percent said their doctors did not ask about their alcohol use. A mother reported that they drank every day during pregnancy to help her relax and to prevent premature labor, as provided by their physician.
Most medical schools are no classes on FAS or how the communication of the risks of alcohol consumption during pregnancy to expectant mothers, said program director Erin Frey NOFAS, but the organization is working with Georgetown University on an elective class to start in this autumn.
Other data show that the mothers, according to their consumption of alcohol, May hide the truth.
A study published in the April issue of American Journal of Obstetrics and Gynecology showed 94 of 103 pregnant women, when asked how much they had consumed alcohol during pregnancy, it would have none. However, through hair and urine samples, researchers found that 19 of the women were drinking.
The dangers of alcohol consumption during pregnancy has been largely overlooked, said Robeson, the Frederick County organizes first conference on fetal alcohol syndrome and disturbances in this spring. The conference was attended by experts in medicine, mental health, education and social services, Robeson, and said she hopes to continue the success of the event to help even more families know where to go for help.

Monday, February 9, 2009

alcohol related deaths that do not involve car crashes

Drunk driving causes more than 25, OOO deaths per year. a total of 100,000 deaths per year by the impact of alcohol.Correction: According to the NHTSA Web site (nrd.nhtsa.dot.gov/pdf/nrd-30/NCSA/RNotes/2006/810686.pdf), there were 43,443 alcohol-related traffic fatalities in 2005 in the USA. By comparison, AIDS claimed 18,000 lives in 2003.

How can alcohol to blame for 100,000 deaths per year?
5% of all deaths from diseases of the circulatory system are attributed to alcohol.
15% of all deaths from diseases of the respiratory system are attributed to alcohol.
30% of all deaths from accidents caused by fire and flames are attributed to alcohol.
30% of all accidental drowning are attributed to alcohol.
30% of all suicides are attributed to alcohol.
40% of all deaths from accidental falls are attributed to alcohol.
45% of all deaths in automobile accidents are attributed to alcohol.
60% of all murders are attributed to alcohol.
(Source: NIDA Report, Scientific American and the Addiction Research Foundation of Ontario.) See also alcohol consumption and mortality, alcohol-poisoning deaths, CDC report,100,000 deaths. That is more than just a statistic. This is with 100,000 persons. 100,000 individuals with lives not fully lived. 100,000 people grieved by mothers, fathers, brothers, sisters and children. Every year.

prison fetal alcohol syndrome son worse

When Ivy and Rodney Kiddle of Raymond, Alta., 15 miles southeast of Lethbridge, which her son "Randy" (not his real name) 20 years old, he was a round, happy, 14-month-old whirlwind of energy. "We knew that his own mother and father were chronic alcoholics, but there was no knowledge of fetal alcohol syndrome," says Mr Kiddle. As with most of these children who have problems with puberty Struckmann overnight."He was a beautiful child," recalls Mrs Kiddle. "He had a few problems, but everybody loved him. Then on a Sunday morning when he was 13 he stood up and said:" I will be a devil worshiper and the Baddest person I can be. "By the time we have in the church I was a nervous wreck. He tried to jump out of the van, he pushed, punched and hit, which he never before, I thought he was something. He is never again. "
Randy went from the "protector of the little guy" to a bully. He started in drugs, alcohol, and with his temperament and quick disreputable acquaintances, a lot of trouble. At the age of 19 years, he was diagnosed with fetal alcohol syndrome (FAS). Now 21, Randy is with his seventh attack free. Earlier this year in an effort to provide some protection and stability, Kiddles a deposit on a small house for him and his 33-year-old girlfriend, with the expectation that he would pay the mortgage with its Assured Income for the Severely grant . This plan was not to last, either. "He is very brilliant in many areas, it is known, it may be all snow, but he can not see past his instant desires," Mr. Kiddle relates. "His problem is drug and alcohol abuse, but we can not stop him. The night he was [with violence] was their payday, his $ 818, he had $ 80 left. We have written off $ 6000, in which he for us another $ 2600 for the down payment. I'm just really burnt. I have no money left. We should have a public guardian for him, but by the time he was diagnosed with FAS, he was already an adult. "
Mrs Kiddle adds: "He has a girlfriend, but the marriage would be an absolute disaster. They are so sexually active if they have children ever, oh my goodness. I have pairs of girls, the sexual is horrendous. They want instant satisfaction and sex is to them. A couple gets a girl a shot every three months, it may not be pregnant, but when we tried with our son, we will take his or her individual rights. We want a miracle. I'm 70 years old, and the Lord knows, we're still trying. But it is killing us. We need help. "
The Kiddles believe that a life-institutional agreement is the solution ", perhaps an apartment with shared meals and someone to check on them, three times a day as a senior citizen lodge." It would be cheaper than prison, but none of these facilities for adults and FAS joke at his end, Mr. Kiddle says: "I hope they send him. If he is in prison, we know where he is and be able to relax and not the everyday nuisances. But it is not all of it good. "
The Kiddles are not alone. Each year an estimated 4000 born Canadians are victims of FAS or fetal alcohol effects (FAE). Both the brain damage caused by their mothers during pregnancy to drink heavily. On 9 September, the ninth day of the ninth month at 9:09, bells around the world Tolled, alarming for the 60 million people worldwide, who are marginalized by the disease. In Canada, it is six times as often as AIDS, responsible for 50% of the prison cost taxpayers more than $ 2 million per person for special care and supervision during their lifetime, and is the leading cause of mental disability in the Western world is still totally avoided. Strange, but the disease is largely unknown to the average citizen. Although the Bell Tolled for these "invisible plague", organizers warn that with these increasingly gloomy statistics, the bells should be a wake-up call for everyone who loves children.
"Only a concern for the people today are living with fetal alcohol syndrome and fetal alcohol effects, costs at least $ 600 billion, the approximate size of the national debt," claims International FAS Awareness Day co-founder, Torontonian Bonnie Buxton. "For FAS people within the judiciary, it costs us $ 5 billion a year. It is the biggest health problem in the country, and if we are to the taxpayers that we have against them, but people are not respected."
The cause for the phenomenon, she says, is that women drink more than before. "We want the world to remind you that during these nine months of pregnancy and during breast-feeding or planning to conceive, a woman should not consume alcohol." Like many adoptive parents, Ms. Buxton and her husband, Brian Philcox, eight unbearably frustrating years and tens of thousands of dollars to get a diagnosis on the many mysterious disfunctions, where their daughter, Colette, now 20th As Mrs Buxton in the March issue of Readers' Digest, they are finally a professional knowledge of FAS, only the diagnosis too late to big difference in their lives. Many of these parents are demanding change. Their work, combined with new research offers new hope for the future.
The national spotlight focused on the FAS this year, when a young man diagnosed with the condition was associated with kidnapping and first-degree murder. David Trott, 20, is accused of killing nine-year-old Jessica Russell, whose body was in a burned-out trailer in the vicinity of Mission, BC, on 5 May. Before the killing, Trott had psychiatric help but was told none was. During his hearing, he gazed vacantly around the courtroom and at the end of the process, asked his lawyer what he. He is now in a psychiatric evaluation to determine his mental competency to court, and his first meeting is scheduled for 15 January.
Diagnoses of FAS to change the judicial system in the U.S. In the first decision of its kind, a Tucson, Arizona, a judge commuted the death sentence of convicted murderer John Eastlack in 1997, based in part on Eastlack's FAS. Instead, he will the rest of his life in prison. "The judge asked me:" Why did it keep the child over and over again? "Psychologist Patricia Tanner Halverson said the Tucson Citizen." Parents ask me, "What is happening to my child?" The child has, the behavior of a person who had too much to drink. And they do not always have a chance to sober. "
Children with severe FAS are born full of alcohol in the womb. Teresa Kellerman of Tucson, co-founder of the Bell-Ringing FAS Day, says the day of its adoption of son John was born, his mother was Indian in a hospital in Denver, drunk. When he was born, the smell of alcohol filled the delivery room. "He was angry with alcohol," says Kellerman. "He was in the midst of her." Even if John, now 23, has never had a drink in his life, Ms. Kellerman says he has a cat that never leaves. "If he is not on his medication, it's just how drunk he part of the brain has been damaged, he has no impulse control, have not been convicted, he acts silly. But he is one of the fortunate ones, the response to drugs, after he takes it like it is just someone sober up. "
While John is physically mature at five meters high, he is emotionally immature. "At any time of day he could be anywhere from age two o'clock-23 o'clock," Mrs. Kellerman reports. "I call him my" boy-man. "He flirts inappropriately, I have the proximity to him, 24-7. If I were him take the dog for a walk around the block a while back, a neighbor, he rang the bell and started the inappropriate sexual comments. You understood, because She knows what John ... but not her husband. "knowledge, the possibility of sexual harassment charges, John spoke to his mother about his worries for the future. "He said:" I know that I could, without doing anything, which I do not, then I could go to jail. I know what happens in prison, and I think I would be better dead. "" Mrs. Kellerman, who has a Web site, www.fasstar.com, notes that John's mental retardation is no protection from the prison and inmates. It concludes: "I just work around him from prison and from the morgue."
It is no coincidence that John and Randy Indian children are adopted, FAS / FAE has reached epidemic proportions among the Aboriginal population. 1987 an article in the Canadian Medical Association Journal about a FAS prevalence is one of eight children in a small BC Indian community, while in some remote Alaskan villages, FAS was one of five births. In 1997, teachers in a school in northern Manitoba Ojibwa sought help when half of their students were incapable of learning. Researchers found an astonishing 30% of mothers admitted to drinking heavily during pregnancy. Ten percent of children diagnosed with FAS, and three to four times that many with FAE. In other words, almost half of the children on the reserve list will be brain-damaged by prenatal exposure to alcohol.
Nor is this unique reserve, medical geneticist and professor of pediatrics and child health at the University of Manitoba, Dr. Ab Chudley, managing the research. While stressing that the FAS problem is not race, but the social fact, "people are using alcohol to drown their problems," he believes that FAS, which are traditionally more likely than guilt "Culture Clash", is the reason, many Indian-white adoptions break. "If these young people suddenly go completely mad and uncontrollable, it is not cultural struggle, it is the result of prenatal alcohol exposure," Dr. Chudley says.
Kim Meawasige, a social worker with Native Child and Family Services in Toronto, agrees. "During my first five years at the forefront of street children, I began to see a pattern among the locals, with the adoption breakdown issues," she explains. "An estimated 65% of all children will be arrested because of alcoholism, and as we investigated, we began to recognize many of the children suffered from FAS. Many of them are in trouble with the law, and many were between 30 to 56 nursing homes in their Living with the blame always on hyperactivity, ADHD [hyperactive attention deficit disorder], or in a non-native, when the reality was they FAS. "

Thursday, February 5, 2009

oregon governor's council on alcohol and drug abuse

Council Duties

The Council is charged with implementing the legislative policy by:
Describing the need for prevention and treatment services and strategies, and the method by which state and federal resources shall be prioritized. Setting forth principles guiding the purchase of services and strategies from local community providers. Identifying outcomes and a method for monitoring those outcomes. Identifying consistent standards for measuring prevention and treatment provision/success. Outlining a process for providing training and technical assistance to local providers, including special populations. Identifying how prevention and treatment link to other services and supports for children and families. Assessing the economic and social impact of alcohol and drug abuse on Oregon and report the findings and recommendation to the Governor by January 1st of each even-numbered year. Reviewing and make recommendations to the Governor on the goals, financing, priorities and a state plan for prevention, intervention and treatment of alcohol and drug abuse problems, which encompasses all appropriate state agencies by January 1st of each even-numbered year. Reviewing alcohol and drug abuse programs and make recommendations to the Governor on the effectiveness and priorities for improvements of all such prevention and treatment programs for alcohol and drug problems engages in or financed through state agencies by January 1st of each even-numbered year. Ensuring that each state agency or other entity that is responsible for a component of the local coordinated comprehensive plan shall ensure that a biennial evaluation of the plan component is conducted according to a consistent framework. Working to ensure broad-based citizen involvement in the planning and execution of the alcohol and drug prevention and treatment plans at both the state and local level. The Council is also directed by statute to:
Assess the economic and social impact of alcohol and drug abuse on the State of Oregon and report the findings and recommendations to the Governor by January 1 of each even-numbered year. Review and make recommendations to the Governor on the goals, financing, priorities and a state plan for prevention, intervention and treatment of alcohol and drug abuse problems, which encompasses all appropriate state agencies, by January 1 of each even-numbered year. Review alcohol and drug abuse programs and make recommendations to the Governor on the effectiveness and priorities for improvements of all such prevention and treatment programs for alcohol and drug problems engaged in or financed through state agencies by January 1 of each even-numbered year.

european vs united states rate of fetal alcohol syndrome

Incidence Rate for Fetal alcohol syndrome: approx 1 in 755,555 or 0.00% or 359 people in USA [about data] Extrapolation of Incidence Rate for Fetal alcohol syndrome to Countries and Regions: WARNING! EXTRAPOLATION ONLY. NOT BASED ON COUNTRY-SPECIFIC DATA SOURCES. The following table attempts to extrapolate the above incidence rate for Fetal alcohol syndrome to the populations of various countries and regions. As discussed above, these incidence extrapolations for Fetal alcohol syndrome are only estimates and may have very limited relevance to the actual incidence of Fetal alcohol syndrome in any region: